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Research Objectives and Common Data Elements for Degenerative Cervical Myelopathy

by Amanda Kayser | Aug 06, 2019

Research on Degenerative Cervical Myelopathy is Inefficient and Needs Stakeholder Opinions

What problem are we addressing? Degenerative Cervical Myelopathy (DCM), arises when arthritic changes of the cervical spine compress and injure the spinal cord. It is estimated to affect up to 2% of adults. Currently few patients make a full recovery, living with life-long disability and poor quality of life. Research advances are urgently needed.

It is estimated that 85% of healthcare research fails to deliver an actual or potential healthcare benefit; deficiencies in the design of research, especially failure to consult relevant stakeholders, are a leading contributor. How can we address this in DCM? Organizations such as the James Lind Alliance (JLA) and Core Outcome Measures in Effectiveness Trials (COMET) advocate multi-stakeholder priority-setting partnerships and core-outcome sets. AOSpine and the University of Cambridge are leading a JLA-informed DCM study. RECODE-DCM seeks to engage stakeholders from across the globe to reach a consensus on the research priorities, a core outcome set, core data elements, a core measurement set and the definition of DCM.

We need your help! The involvement of all stakeholders is essential: health professionals, patients, relatives and caregivers. Participation involves completing a short online survey. All participants can register to be indexed as collaborators on RECODE-DCM publications.

 

Survey link: https://recode-dcm.com/how-to-participate

Further information: https://recode-dcm.com/

Queries to Olesja Hazenbiller: ohazenbiller@aospine.org

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